Stories

Lily died at just under six-weeks old. She had Neonatal Epilepsy.

Arlo has a rare genetic neurological condition called Hyperekplexia, a startle disease which means he goes stiff and can’t breathe.…

23-month-old Renessme started experiencing seizures when she was eight weeks old and her parents, Mariana and Cristian, said no one…

Two-year-old Kian has two rare chromosome conditions which affect his development and quality of life and has spent half of…

Last summer, our daughter, Erinne, died from a highly aggressive and incurable brain tumour. She was just seven years old.

Lexi was born almost five weeks early with a congenital heart defect. Last year, shortly after turning 17, Lexi died…

Robin, suffered a stroke in the womb. Robin is believed to be the youngest ever stroke survivor in the country.

When Felicity was diagnosed with a brain tumour at the age of three, her parents were told there were no…

The mother of a two-year-old who has already exceeded her life expectancy, says her amazing daughter is the definition of…

Fifteen-year-old Kiya has MELAS, a mitochondrial disease, and at one point, her parents Rebecca and James, were told they wouldn’t…

Four-year-old Amelia has a rare disorder which means she has a chromosome deletion and a duplication, which affects her development…

In a world that was turned upside down at Danielle’s 20-week scan, Rainbows means happiness, a place they can make…