Erinne loved Rainbows and dreamed of helping to raise money to support other children and their families. This spring, we are making that a reality.

This is Erinne’s story.

“Last summer, our daughter, Erinne, died from a highly aggressive and incurable brain tumour. She was just seven years old.

When we were given the devastating news of her diagnosis, we knew we wouldn’t have Erinne for long. To be faced with losing your child is inconceivable. To do it alone, is unimaginable.

We couldn’t have coped without Rainbows when Erinne was with us, when she died, and to this day. Rainbows supported us at every stage of Erinne’s journey and that was so important for us all.

Erinne loved being at Rainbows. She loved her sensory baths, drinking lots of chocolate milk and even being able to take our own dog, Megan, in for a visit. Rainbows was her happy place, even on her darkest days. A place where she didn’t feel different.

For us, Rainbows was more than the building, it was everything. We had visits from the Hospice at Home Team, including Specialist Nurses, a Complementary Therapist and Play Specialist. We were so supported by everyone, any time we needed.”

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“Towards the end, we had to decide where we wanted Erinne to spend her final days and we knew we wanted this to be at home. The highly experienced nurses at Rainbows helped us to make this happen. When Erinne passed away, a specialised cool blanket meant our wider family could visit, give her a kiss and cuddle and say their goodbyes.

The strong and incredible team are the fabric of Rainbows. They were a shoulder to lean on, a hand to hold and they guided us through such a difficult time. I have never known such a positive atmosphere and culture. They truly are wonderful people.
We couldn’t have managed our journey without Rainbows, and a year later, they are still there for us. Our parents even go to the Grandparents Group, which is such a tremendous support to them, and is so special.

They support the whole family, and we can’t imagine how things would have been without Rainbows.
What’s important to us is that Erinne is talked about and remembered. Erinne always had a smile on her face. Even when things weren’t particularly positive, she lived life to the absolute full.

She had the most kind and generous heart, and dreamed of raising money for Rainbows, so that other children and families could experience the same love, care and support she did. She would be so proud to know she was helping children today by championing the place and the people who meant so much to her.

Please donate today so that families across the East Midlands never face the unimaginable alone.

Jenn and Chris,
Erinne’s mummy and daddy

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Read Erinne’s Story

 

With only 13% statutory funding, Rainbows must raise £8.5 million every year to be there for babies, children and young people, like Erinne.

Your donation today will help support more families with expert care, wherever it’s needed, so they can spend precious time together for as long as possible.

Thank you – your support means so much to us.

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