Family stories

Elijah's Story

A brain injury has left nine-year-old Elijah unable to do anything for himself and needing round the clock care - but he embraces life with a smile on his face.

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Orla's Story

At her 20-week pregnancy scan, Laura was given the unexpected, and devastating, news that one of her babies, Orla, had Hydrocephalus – a build-up of fluid on the brain. Laura had already suffered two miscarriages and undergone IVF.

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Ollie and Milo's Story

“I held two of my babies in my arms as they passed away; two amazing little boys; two fighters.” Their parents, Chelsea and Jordan, feel our hospice supported them through their darkest times.

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Ryan's Story

When he was six-years-old, Ryan’s devastating muscle wasting condition was diagnosed after his parents, were concerned about how much he fell over. They were told he wouldn’t live past the age of 20. But Ryan, who has Duchenne Muscular Dystrophy (DMD), is now 22 and has defied the odds.

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Jodie's Story

With a world full of dreams ahead of her, Jodie was diagnosed with a rare form of bone cancer when she was just 17. What started out as aches and pains she was unable to shake off, turned in to weeks of vigorous testing that led to the devastating diagnosis for Jodie.

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Jodie's story for Rainbows Hospice

Hannah's Story

“Hannah was special from the beginning,” said mum Kate. “She was a magical girl who brought us so much joy. She was so beautiful and the most undemanding little thing.”

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A baby in a red baby grow and arms up
Moosa with his family at Rainbows Hospice for Children and Young People

Moosa's Story

Moosa was born with a heart condition, has suffered multiple heart attacks and has heart failure but is too ill for the transplant he so desperately needs

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Krystian's story

Krystian has rare muscle weakening disease Duchenne Muscular Dystrophy. He was diagnosed when he was eight-months-old.

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Krystian and his dog ahead of a visit to Rainbows Hospice
A baby with a tube from their nose, asleep

Lily's story

Lily was just five-months-old when she died in January of a rare deficiency disorder that couldn’t be cured. “From the minute she was born, Lily fought for her life.

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Rae's Story

Three days before her second birthday, Rae was diagnosed with spinal muscular atrophy, a muscle wasting disease.

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Rae and her mum at Rainbows Hospice
Michaela's story at Rainbows Hospice

Michaela's Story

Michaela, who first visited Rainbows when she was 14 and died 12 years later. She needed round the clock care from parents Steve and Karen, who turned to our hospice for help.

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Isla's Story

Isla has an illness so rare that she may be the only child in the world with the condition.

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Isla, Paige and their mum at Rainbows Hospice
Lola's story for Rainbows Hospice for Children and Young People

Lola's Story

Lola is totally reliant on others for every aspect of her life and five years ago Rainbows became the families lifeline

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Helen's Story

In her little life, six-year-old Helen has had countless operations and spent months in hospital but her parents describe her as such a happy girl.

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Helen Bull, who comes to Rainbows Hospice for Children and Young People, enjoying time on a roundabout
Evelyn with her siblings

Evelyn's Story

Evelyn was just eight months old when she had a cardiac arrest at home, leaving her brain starved of oxygen and resulting in damage which has changed her life.

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Winnie's Story

Winnie has battled against the odds with a rare brain condition.

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Winnie with her mum at Rainbows Hospice for Children and Young People
Kayden at Rainbows Hospice for Children and Young People

Kayden's Story

Kayden is a fighter. In his young life, he has battled cancer, suffered a cardiac arrest and been the victim of Septicaemia.

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Aadi's story

It was late 2016 that Aadi and his family found themselves on a devastating journey they never expected.

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Aadie's Story for Rainbows Hospice for Children and Young People
Jude and McKenzie at Rainbows Hospice for Children and Young People

Jude and McKenzie's Story

Despite being ventilated, brothers Jude and McKenzie can enjoy swimming with their family when they visit Rainbows.

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Jayden's Story

At first glance you might easily think Jayden was like any other child.

But five-year-old Jayden is not like other children. He is, in fact, often very poorly. And every birthday, every Christmas with her son is a milestone for which his mother, Sarah, is grateful.

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Jayden enjoying multisensory at Rainbows Hospice for Children and Young People
Izzy's Story for Rainbows Hospice for Children and Young People

Izzy's story

Despite suffering daily seizures and needing round the clock care, nine-year-old Izzy is a “little ray of sunshine”.

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Jessie's Story

Jessie suffers from a rare and catastrophic form of intractable epilepsy and factors such as the weather and over stimulation can cause life-threatening seizures.

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Jessie and her mum at Rainbows Hospice for Children and Young People
Preston smiling at Rainbows Hospice for Children and Young People

Preston's story

Preston has a life-threatening heart condition but he doesn’t let that stop him from running around, playing and enjoying life.

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Patrick's Story

It was at her 20-week antenatal scan that Vicky Langford discovered one of her unborn twins, Patrick and Frederick had a rare brain condition and was unlikely to survive.

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Patrick and his parents in the gardens at Rainbows Hospice
A children in the music therapy room at Rainbows Hospice for Children and Young People

Reece's story

Reece was born with a condition which brings a complex range of life-limiting challenges and his future remains uncertain.

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Kaleb's Story for Rainbows Hospice for Children and Young People

Kaleb's story

Kaleb was born unexpectedly at home... now 15 months old he continues to make progress but his future remains uncertain..

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