Family stories

Jodie's Story

With a world full of dreams ahead of her, Jodie was diagnosed with a rare form of bone cancer when she was just 17. What started out as aches and pains she was unable to shake off, turned in to weeks of vigorous testing that led to the devastating diagnosis for Jodie.

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Jodie's story for Rainbows Hospice
Lola's story for Rainbows Hospice for Children and Young People

Lola's Story

Lola is totally reliant on others for every aspect of her life and five years ago Rainbows became the families lifeline

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Helen's Story

In her little life, six-year-old Helen has had countless operations and spent months in hospital but her parents describe her as such a happy girl.

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Helen Bull, who comes to Rainbows Hospice for Children and Young People, enjoying time on a roundabout
Evelyn with her siblings

Evelyn's Story

Evelyn was just eight months old when she had a cardiac arrest at home, leaving her brain starved of oxygen and resulting in damage which has changed her life.

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Winnie's Story

Winnie has battled against the odds with a rare brain condition.

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Winnie with her mum at Rainbows Hospice for Children and Young People
Moosa with his family at Rainbows Hospice for Children and Young People

Moosa's Story

Moosa was born with a heart condition, has suffered multiple heart attacks and has heart failure but is too ill for the transplant he so desperately needs

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Haroon's story

Haroon Seedat was the very first young person to ever come through the doors of Rainbows in 1994 when he was 19-months-old.

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Haroon's Story for Rainbows Hospice for Children and Young People
Jude and McKenzie at Rainbows Hospice for Children and Young People

Jude and McKenzie's Story

Despite being ventilated, brothers Jude and McKenzie can enjoy swimming with their family when they visit Rainbows.

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Arliya-Leigh's story

Arliya-Leigh was only a few hours old when her parents were told a plan was being implemented for her to “go home to die”. But Arliya-Leigh, who has Hypoxic Ischemic Encephalopathy (HIE) is proving medics wrong as she continues to fight and has now celebrated her first birthday.

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Arliya-Leigh and her mum at Rainbows Hospice for Children and Young People
Kayden at Rainbows Hospice for Children and Young People

Kayden's Story

Kayden is a fighter. In his young life, he has battled cancer, suffered a cardiac arrest and been the victim of Septicaemia.

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Aadi's story

It was late 2016 that Aadi and his family found themselves on a devastating journey they never expected.

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Aadie's Story for Rainbows Hospice for Children and Young People
Darlene who visits Rainbows Hospice for Children and Young People

Darlene's story

The Hydrotherapy Pool at Rainbows is the only place Darlene can go swimming because everywhere else is just too cold for her. Find out how else we support Darlene and her family, by reading her story.

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Krystian's story

Krystian has rare muscle weakening disease Duchenne Muscular Dystrophy. He was diagnosed when he was eight-months-old.

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Krystian and his dog ahead of a visit to Rainbows Hospice
Izzy's Story for Rainbows Hospice for Children and Young People

Izzy's story

Despite suffering daily seizures and needing round the clock care, nine-year-old Izzy is a “little ray of sunshine”.

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Jayden's Story

At first glance you might easily think Jayden Raven was like any other child.

But five-year-old Jayden is not like other children. He is, in fact, often very poorly. And every birthday, every Christmas with her son is a milestone for which his mother, Sarah, is grateful.

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Jayden enjoying multisensory at Rainbows Hospice for Children and Young People
Preston smiling at Rainbows Hospice for Children and Young People

Preston's story

Preston has a life-threatening heart condition but he doesn’t let that stop him from running around, playing and enjoying life.

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Olivia's story

Olivia has a condition so rare there have only been four reported cases worldwide in the last 10 years. She has suffered over 400 seizures a day and her parents have never heard their little girl cry.

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A Rainbows Hospice for Children and Young People family
Vivek's Story for Rainbows Hospice for Children and Young People

Vivek's Story

Campaigner, advocate, superhero... meet Vivek

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Jessie's Story

Jessie suffers from a rare and catastrophic form of intractable epilepsy and factors such as the weather and over stimulation can cause life-threatening seizures.

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Jessie and her mum at Rainbows Hospice for Children and Young People
A children in the music therapy room at Rainbows Hospice for Children and Young People

Reece's story

Reece was born with a condition which brings a complex range of life-limiting challenges and his future remains uncertain.

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Patrick's Story

It was at her 20-week antenatal scan that Vicky Langford discovered one of her unborn twins, Patrick and Frederick had a rare brain condition and was unlikely to survive.

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Patrick and his parents in the gardens at Rainbows Hospice
Kaleb's Story for Rainbows Hospice for Children and Young People

Kaleb's story

Kaleb was born unexpectedly at home... now 15 months old he continues to make progress but his future remains uncertain..

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Isla-Grace's story

When heartbreak turned to hope for baby Isla-Grace.

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Isla-Grace's story for Rainbows Hospice for Children and Young People