Family stories
Hannah's Story
âHannah was special from the beginning,â said mum Kate. âShe was a magical girl who brought us so much joy. She was so beautiful and the most undemanding little thing.â
Lily's story
Lily was just five-months-old when she died in January of a rare deficiency disorder that couldnât be cured. âFrom the minute she was born, Lily fought for her life.
Krystian's story
Krystian has rare muscle weakening disease Duchenne Muscular Dystrophy. He was diagnosed when he was eight-months-old.
AJ's Story
Linda and Andrew were told AJ wouldnât live past the age of two but he is now 16.
Jodie's Story
With a world full of dreams ahead of her, Jodie was diagnosed with a rare form of bone cancer when she was just 17. What started out as aches and pains she was unable to shake off, turned in to weeks of vigorous testing that led to the devastating diagnosis for Jodie.
Moosa's Story
Moosa was born with a heart condition, has suffered multiple heart attacks and has heart failure but is too ill for the transplant he so desperately needs
Rae's Story
Three days before her second birthday, Rae was diagnosed with spinal muscular atrophy, a muscle wasting disease.
Michaela's Story
Michaela, who first visited Rainbows when she was 14 and died 12 years later. She needed round the clock care from parents Steve and Karen, who turned to our hospice for help.
Isla's Story
Isla has an illness so rare that she may be the only child in the world with the condition.
Lola's Story
Lola is totally reliant on others for every aspect of her life and five years ago Rainbows became the families lifeline
Helen's Story
In her little life, six-year-old Helen has had countless operations and spent months in hospital but her parents describe her as such a happy girl.
Evelyn's Story
Evelyn was just eight months old when she had a cardiac arrest at home, leaving her brain starved of oxygen and resulting in damage which has changed her life.
Kayden's Story
Kayden is a fighter. In his young life, he has battled cancer, suffered a cardiac arrest and been the victim of Septicaemia.
Haroon's story
Haroon Seedat was the very first young person to ever come through the doors of Rainbows in 1994 when he was 19-months-old.
Jude and McKenzie's Story
Despite being ventilated, brothers Jude and McKenzie can enjoy swimming with their family when they visit Rainbows.
Aadi's story
It was late 2016 that Aadi and his family found themselves on a devastating journey they never expected.
Darlene's story
The Hydrotherapy Pool at Rainbows is the only place Darlene can go swimming because everywhere else is just too cold for her. Find out how else we support Darlene and her family, by reading her story.
Jayden's Story
At first glance you might easily think Jayden was like any other child.
But five-year-old Jayden is not like other children. He is, in fact, often very poorly. And every birthday, every Christmas with her son is a milestone for which his mother, Sarah, is grateful.
Izzy's story
Despite suffering daily seizures and needing round the clock care, nine-year-old Izzy is a âlittle ray of sunshineâ.
Jessie's Story
Jessie suffers from a rare and catastrophic form of intractable epilepsy and factors such as the weather and over stimulation can cause life-threatening seizures.
Preston's story
Preston has a life-threatening heart condition but he doesnât let that stop him from running around, playing and enjoying life.
Patrick's Story
It was at her 20-week antenatal scan that Vicky Langford discovered one of her unborn twins, Patrick and Frederick had a rare brain condition and was unlikely to survive.
Reece's story
Reece was born with a condition which brings a complex range of life-limiting challenges and his future remains uncertain.
Kaleb's story
Kaleb was born unexpectedly at home... now 15 months old he continues to make progress but his future remains uncertain..