A young boy looking at of a window


Preston has a life-threatening heart condition but he doesn’t let that stop him from running around, playing and enjoying life.

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A mum holding her young daughter and smiling


Winnie, has battled against the odds with a rare brain condition.

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A young girl doing arts and crafts


Darlene suffers from a rare condition which causes muscle wasting and weakness. In the last few years, her family has…

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A family sat outside in the sun


It was at her 20-week antenatal scan that Vicky Langford discovered one of her unborn twins, Patrick and Frederick had…

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A young girl on a swing


Jessie suffers from a rare and catastrophic form of intractable epilepsy and factors such as the weather and over stimulation…

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A young girl at Rainbows


Despite suffering daily seizures and needing round the clock care, Izzy is a “little ray of sunshine”.

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A young boy sat in soft play


At first glance you might easily think Jayden was like any other child. But Jayden is not like other children.…

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A family walking


It was Christmas 2016 that Aadi and his family found themselves on a devastating journey they never expected.

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Reece was born with a condition which brings a complex range of life-limiting challenges and his future remains uncertain.

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A young girl sat outside waving


Isla has an illness so rare that she may be the only child in the world with the condition.

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A mum and daughter


Three days before her second birthday, Rae was diagnosed with spinal muscular atrophy, a muscle wasting disease.

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A young boy with his dog


Krystian became confined to a wheelchair when he was eight-years-old and shortly afterwards, the family discovered our hospice.

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