A young boy looking at of a window

Preston

Preston has a life-threatening heart condition but he doesn’t let that stop him from running around, playing and enjoying life.

Read Preston's story
A mum holding her young daughter and smiling

Winnie

Winnie, has battled against the odds with a rare brain condition.

Read Winnie's story
A young girl doing arts and crafts

Darlene

Darlene suffers from a rare condition which causes muscle wasting and weakness. In the last few years, her family has…

Read Darlene's story
A family sat outside in the sun

Patrick

It was at her 20-week antenatal scan that Vicky Langford discovered one of her unborn twins, Patrick and Frederick had…

Read Patrick's story
A young girl on a swing

Jessie

Jessie suffers from a rare and catastrophic form of intractable epilepsy and factors such as the weather and over stimulation…

Read Jessie's story
A young girl at Rainbows

Izzy

Despite suffering daily seizures and needing round the clock care, Izzy is a “little ray of sunshine”.

Read Izzy's story
A young boy sat in soft play

Jayden

At first glance you might easily think Jayden was like any other child. But Jayden is not like other children.…

Read Jayden's story
A family walking

Aadi

It was Christmas 2016 that Aadi and his family found themselves on a devastating journey they never expected.

Read Aadi's story

Reece

Reece was born with a condition which brings a complex range of life-limiting challenges and his future remains uncertain.

Read Reece's story
A young girl sat outside waving

Isla

Isla has an illness so rare that she may be the only child in the world with the condition.

Read Isla's story
A mum and daughter

Rae

Three days before her second birthday, Rae was diagnosed with spinal muscular atrophy, a muscle wasting disease.

Read Rae's story
A young boy with his dog

Krystian

Krystian became confined to a wheelchair when he was eight-years-old and shortly afterwards, the family discovered our hospice.

Read Krystian's story