Stories

Ollie and Milo

“I held two of my babies in my arms as they passed away; two amazing little boys; two fighters.”

Preston

Preston has a life-threatening heart condition but he doesn’t let that stop him from running around, playing and enjoying life.

Winnie

Winnie, has battled against the odds with a rare brain condition.

Darlene

Darlene suffers from a rare condition which causes muscle wasting and weakness. In the last few years, her family has…

Patrick

It was at her 20-week antenatal scan that Vicky Langford discovered one of her unborn twins, Patrick and Frederick had…

Jessie

Jessie suffers from a rare and catastrophic form of intractable epilepsy and factors such as the weather and over stimulation…

Izzy

Despite suffering daily seizures and needing round the clock care, Izzy is a “little ray of sunshine”.

Jayden

At first glance you might easily think Jayden was like any other child. But Jayden is not like other children.…

Aadi

It was Christmas 2016 that Aadi and his family found themselves on a devastating journey they never expected.

Reece

Reece was born with a condition which brings a complex range of life-limiting challenges and his future remains uncertain.

Isla

Isla has an illness so rare that she may be the only child in the world with the condition.

Rae

Three days before her second birthday, Rae was diagnosed with spinal muscular atrophy, a muscle wasting disease.