Stories

Orla

At her 20-week pregnancy scan, Laura was given the unexpected, and devastating, news that one of her babies, Orla, had…

Hannah D

Hannah’s siblings, Amy and Daniel, were diagnosed with a rare life-limiting condition called Sanfilippo, which is a metabolic disorder and…

Tom

Rainbows is so much more than being able to stay there, they look after the parents. We go to a…

Elijah

A brain injury has left Elijah unable to do anything for himself and needing round the clock care - but…

Lily

Lily was just five-months-old when she died in January of a rare deficiency disorder that couldn’t be cured. “From the…

Ryan

When he was six-years-old, Ryan’s devastating muscle wasting condition was diagnosed after his parents, were concerned about how much he…

Ollie and Milo

“I held two of my babies in my arms as they passed away; two amazing little boys; two fighters.”

Preston

Preston has a life-threatening heart condition but he doesn’t let that stop him from running around, playing and enjoying life.

Winnie

Winnie, has battled against the odds with a rare brain condition.

Darlene

Darlene suffers from a rare condition which causes muscle wasting and weakness. In the last few years, her family has…

Patrick

It was at her 20-week antenatal scan that Vicky Langford discovered one of her unborn twins, Patrick and Frederick had…

Jessie

Jessie suffers from a rare and catastrophic form of intractable epilepsy and factors such as the weather and over stimulation…