Stories

Leo

Our two-year-old son, Leo has the most severe form of Junctional Epidermolysis Bullosa - a group of genetic conditions that…

Willow

Willow has Dilated Cardiomyopathy and severe heart failure. Her heart works at just 20 percent capacity. Her parents, have been…

Joshua

Joshua was born unexpectedly at 26 weeks and spent the first four months of his life in hospital.

Laya

“Rainbows means I have a family and a home in the UK.” These are the words of Fareda, whose six-year-old…

Freya

Freya has a syndrome so rare that she has to sleep under a special lamp every night and her parents…

Harriet

“For a long time, we didn’t even know if we were going to be bringing a baby home from hospital…

Freddie

Four-year-old Freddie Coton began having constant seizures when he was just two-weeks old and he was rushed into hospital. His…

James

“Meningitis was a word I had heard about but never thought much about. A word that now controlled us. A…

Zoe

For the family, life has been a struggle and they have all benefited from the support of our charity. Zoe,…

Thea

When Francesca had her 20-week pregnancy scan, she discovered her baby had a serious heart defect and would need immediate…

Erin

Erin has two life-limiting illness and is recovering from cancer. But Erin is full of smiles and happiness and doesn’t…

Ella

When Ella died at the age of 22 from a rare condition, her parents were supported by our charity.