Stories

Arlo

Arlo has a rare genetic neurological condition called Hyperekplexia, a startle disease which means he goes stiff and can’t breathe.…

Lily

Lily died at just under six-weeks old. She had Neonatal Epilepsy.

Dotty

When Katie gave birth to her daughter at just 23 weeks, no one expected her to survive. Against all the…

Erinne

Last summer, our daughter, Erinne, died from a highly aggressive and incurable brain tumour. She was just seven years old.

Lexi

Lexi was born almost five weeks early with a congenital heart defect. Last year, shortly after turning 17, Lexi died…

Robin

Robin, suffered a stroke in the womb. Robin is believed to be the youngest ever stroke survivor in the country.

Immie

The mother of a two-year-old who has already exceeded her life expectancy, says her amazing daughter is the definition of…

Kiya

Fourteen-year-old Kiya has MELAS, a mitochondrial disease, and at one point, her parents Rebecca and James, were told they wouldn’t…

Amelia

Four-year-old Amelia has a rare disorder which means she has a chromosome deletion and a duplication, which affects her development…

Evelyn

In a world that was turned upside down at Danielle’s 20-week scan, Rainbows means happiness, a place they can make…

Nevaeh

My amazing granddaughter Nevaeh was the best gift I could ever ask for; she was such a little darling.

Dai-Shanelle

When my baby was born, she let out a cry. That was the first and only time I have ever…