A young girl sat on the path outside

Orla

At her 20-week pregnancy scan, Laura was given the unexpected, and devastating, news that one of her babies, Orla, had…

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Hannah D

Hannah’s siblings, Amy and Daniel, were diagnosed with a rare life-limiting condition called Sanfilippo, which is a metabolic disorder and…

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Tom

Rainbows is so much more than being able to stay there, they look after the parents. We go to a…

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A young boy with purple lights around him

Elijah

A brain injury has left Elijah unable to do anything for himself and needing round the clock care - but…

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A small baby asleep

Lily

Lily was just five-months-old when she died in January of a rare deficiency disorder that couldn’t be cured. “From the…

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Care staff and a young man playing cards

Ryan

When he was six-years-old, Ryan’s devastating muscle wasting condition was diagnosed after his parents, were concerned about how much he…

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A mum and dad holding their baby

Ollie and Milo

“I held two of my babies in my arms as they passed away; two amazing little boys; two fighters.”

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A young boy looking at of a window

Preston

Preston has a life-threatening heart condition but he doesn’t let that stop him from running around, playing and enjoying life.

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A mum holding her young daughter and smiling

Winnie

Winnie, has battled against the odds with a rare brain condition.

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A young girl doing arts and crafts

Darlene

Darlene suffers from a rare condition which causes muscle wasting and weakness. In the last few years, her family has…

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A family sat outside in the sun

Patrick

It was at her 20-week antenatal scan that Vicky Langford discovered one of her unborn twins, Patrick and Frederick had…

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A young girl on a swing

Jessie

Jessie suffers from a rare and catastrophic form of intractable epilepsy and factors such as the weather and over stimulation…

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