Nottinghamshire Children’s Community Nurses
If a child or young person shows clinical signs of deterioration and concerns are raised about their condition then activation to the acute nursing support service can be offered. Care will then be offered 24 hours a day 7 days a week.

Landline telephone: 0300 123 3387
Emergency OOH: Bleep number : 07659 507206 (only when activated on end of life)

Paediatric Oncology Outreach Nursing Service
Based at Nottingham Children’s Hospital.
Referrals accepted for children 0-18 ( and in utero) with life-limiting illness who have a NCH consultant.
Emotional and psychosocial support,  personal resuscitation planning, discharge planning, referral to services around the child and family in the community, supporting palliative care and end of life care in the hospital, symptom management, support with wishes and choices at end of life, colleague support

Landline telephone: 0115 9249924 x 86276
Caroline Dorsett Paediatric Palliative Care Nurse Specialist 07812275400

Paediatric Oncology Outreach Nursing Service
Oncology outreach nursing Service providing ongoing care, education and support to children and young people between 0-18 years diagnosed with cancer and their families.
Landline telephone: 0115 9249924 ext 65805

Rapid Response Children's Physiotherapy
Rapid response respiratory physiotherapy to reduce hospital admissions secondary to chest infection/facilitate earlier discharge from hospital. Available to children/young people 0-25 years who have:

  • Registered with a Nottingham City / Nottinghamshire County GP
  • Have severe respiratory deficit
  • Have severe neurological disability
  • Under the care of an Acute Consultant

Mobile telephone: 07748 987610 / 07545 419374 / 07966 373860 / 07540 670191 (8am - 5pm)
Out of Hours: 07748 987610 (Saturdays between 1 October - 31 March; 8.30am - 4.30pm)

Child Bereavement Team
Nottingham Childrens Hospital - Queens Medical Centre.
Providing bereavement support following the death of a 0 - 18-year-old to families and professionals, whether the death was expected or unexpected. Pre bereavement support also provided. 
Child Bereavement Team:

Landline telephone: 0115 9249924 x 86276

The Butterfly Project
The Butterfly Project provides comprehensive practical and emotional support to children & young people with life limiting illnesses and their families, from diagnosis to bereavement. 
The project is funded by the local health authority and can provide a service in the following areas:- City of Nottingham, Gedling, Rushcliffe & Broxtowe.

What they offer:

  • Support to individuals in their family homes and within the community.
  • Practical help and advice along the child’s/young person’s journey in partnership with a wide range of medical professionals.
  • Individual work with the child/young person in respect to hopes, fears, dreams and wishes.
  • Emotional support to children/young people and families to explore and express their feelings and make informed choices around ‘end of life care’.
  • Opportunities to participate in a variety of activities and have meaningful experiences.
  • A range of Family days, activities and events, in response to the needs of the children, young people, their siblings and parents/carers we work with.
  • A post bereavement service of two years for bereaved siblings and parents · Sibling support groups and workshops, allowing opportunity to talk about & understand their feelings and to also have some fun.

Office hours: 9am - 5pm, Monday to Friday
Contact: Kerry Lawson, Specialist Family Support Worker, Barnado's Family Support Services - Nottinghamshire and Derbyshire
Landline telephone: 0115 9255565
Fax Number: 0115 224311
Post: Oban House, 8 Chilwell Road, Beeston, Nottingham, NG9 1EJ