Could you be the sunshine in the storm?
You have just had the devastating news that your child has a serious condition and their life will be limited. You’re overwhelmed with grief for the life they should have had, you’re confused with all of the medical information and scared for what the future may hold.
In August 2017 this is exactly where new parents Becki and Phil found themselves. This is their story.
Kaleb was born unexpectedly at home and at birth he just didn’t breathe. They were rushed by ambulance to hospital but despite all of the efforts of the hospital team to resuscitate him quickly, he was left with a catastrophic brain injury. Becki and Phil were told that he would die and it was time to say their goodbyes.
“Our world crumbled all around us, it was a living nightmare,” Becki said. “At ten days old they turned off the machine and removed his tubes. Our little boy was so fragile, he had never breathed without a ventilator. We held him in our arms expecting that this was it. Kaleb breathed, he fought for his life, but was so small and weak. We didn’t know where to turn.
You can deliver the magic throughout the whole year by making a regular monthly donation of £20.
“The intensive care nurse suggested that we take him to Rainbows Hospice to spend Kaleb’s final moments together as a family and where he would receive the very best specialist end-of-life care.”
“As we walked through the doors, the Rainbows team were like the sunshine in the storm. They greeted us with open arms, words full of encouragement and hope, something I could never have imagined. They cared for our family with such deep kindness that the pain somewhat eased and for the first time Kaleb was treated as a little person not as a statistic. I remember thinking we had been given our first real ray of hope. The Rainbows team have held Kaleb through some of his closest moments to death and have kept us central to everything that they have done.”
“They have done everything they can to make life easier for us, they have extended such compassion to us in our time of need, a gift to us that will remain forever in our hearts, our sanctuary of hope.”
“Kaleb has survived, he has significant complex needs but he’s a warrior, our Kaleb the brave.”
You can provide a sanctuary of hope for families like Kalebs’ by making a donation of £20.
Now Becki, Phil and their daughter Eden have made it their mission to help the hospice raise the vital funds they need to help keep their doors open for other families just like their, 24 hours a day, seven days a week. As well as doing a sponsored abseil, they are leading Kaleb’s Christmas Appeal, and are encouraging the public to help raise them meet their target of £15,000 for Rainbows.
“We visit Rainbows regularly and are forever thankful for their love and support for the whole family. They have provided us with a home of hope, a place where we can bear all in our new and uncertain journey. Nothing is beyond them, nothing is too much and you are never too broken for them.”
“They are simply wonderful and we would not be here now if it wasn’t for them whenever we have been overwhelmed by darkness Rainbows has provided little pockets of light.”
There are many local families like Kalebs’ who this Christmas are facing a unknown future, knowing that this Christmas may be their last together as a family. Rainbows relies almost entirely on donations from people like you. Your help will make sure that these families receive the support and care they so desperately need in a world of uncertainty. It will give them the time they need to make treasured memories as a family, because whilst we cannot keep our families children here forever we can give them the memories that will last a lifetime.
Please make a donation today, our children, young people and their families need your help now, because when a life is short there is no time to wait, and for some tomorrow will be too late.
Wishing you and your loved ones a peaceful Christmas.