Frequently Asked Questions

When was Rainbows founded?
The charity was founded in 1994 by Harry and Gail Moore

Who uses Rainbows?
Children and young people from birth to 30 years of age and their families, friends and local community support agencies.

How many children and young people are supported by Rainbows at present?
We are currently supporting 369 children and young people, although this is a fluctuating figure.

We are also supporting 341 bereaved families, and 677 siblings.

Using an average factor of 5 beneficiaries per family eg siblings, parents etc, this can equate to anything up to 2,685 beneficiaries.

What area does Rainbows cover?
Our catchment area covers Leicestershire, Nottinghamshire, Derbyshire, Rutland, Lincolnshire (Predominantly the south) and Northamptonshire (Predominantly the North).

What kind of care does Rainbows offer?
Rainbows aims to meet all the physical, emotional, social and spiritual needs of children, young people, and their families. Care is provided by a team of specialists from a wide range of professional disciplines who work closely with each other, and with others involved in supporting the family.

We provide:
• Residential short breaks
• End-of-life care
• Help with symptom control and palliative care
• Emergency care
• Pre- and post-bereavement support for all family members
• Advisory support to families and professionals
• Highly specialised clinical care
• Enjoyable activities for the siblings of children being cared for
• Day care
• Telephone support
• Spiritual support
• Contact, or key worker support
• Family support
• Youth work
• Cultural Link work
• Pre-school family fun days
• Group work (bereavement, muscular dystrophy, Asian mums etc)
• Therapies
• Physiotherapy
• Play
• Hydrotherapy
• Social activities
• Music
• Multi-sensory
• Complementary therapies (e.g. massage and aromatherapy)

What services are offered within the home?
• Family support – This includes practical support, information support, signposting, emotional support and pre and post bereavement.
• Sibling support – groups and individual work
• Outreach play support – individual family visits to address issues relating to play
• Youth work – available for individual work at home
• Music therapy – both in the hospice and outreach work
• Complementary therapy – both in the hospice and at home
• Symptom control assessment and support – carried out by Dr Sat and/or a Clinical Nurse Specialist
• Group work (sometimes at hospice) Bereavement Group, Muscular Dystrophy group, Asian mum’s group, Parent/Carers Support Group

What is palliative care?
Palliative care for children and young people with life-limiting conditions includes the management of distressing symptoms, provision of short breaks and care through death and bereavement.

Is Rainbows a sad place?
No. Rainbows is a positive place, for living and enriching lives. The hospice helps children and young people reach their full potential and get the most out of their short lives.

Which conditions does Rainbows support?
Rainbows provides care to children and young people who have an incurable condition or a condition which means they are unlikely to live far into adulthood.

Many have a progressive, degenerative condition such as Muscular Dystrophy or Cystic Fibrosis. Some will have a severe neurological disability, which makes them more susceptible to health complications which may cause unexpected deterioration. Examples of this include severe cerebral palsy or multiple disabilities following a brain or spinal cord injury.

We also support children with a wide variety of other conditions including complex heart conditions, irreversible organ failure of the heart, liver or kidneys and progressive condition for which there is no treatment available such as Batten’s Disease or mucopolysaccharidoses.

In 2012 Rainbows began to do some specific work with professionals who support children and young people with cancer conditions and we anticipate that the number of referrals for children and young people with cancers will continue to increase.

How can children and young people be referred?
Most referrals come from health or social care professionals, but anyone can refer a child or young person.

How many nights of short break stays does Rainbows offer?
16 nights per child per year plus emergency admissions on a case by case basis as required on top of that.

How many staff work at Rainbows?
123 full and part time staff and 348 volunteers

How long can a child and family receive care for?
Rainbows offers care and support from the moment of diagnosis through to end of life care. This can be hours or years depending on the condition. We also provide care to families and friends after the child has died through specialist bereavement support.

How much does it cost to run the hospice?
The running of the hospice costs over £5m each year